We are the first and only Center of Excellence for patients with Congenital Adrenal Hyperplasia (CAH). We are a main referral site for pediatric and adult patients with CAH and provide our patients with specialized care through a comprehensive team of clinicians. In addition, Dr. Poppas and colleagues have over 20 years of experience in all areas of pediatric urologic surgery. This allows us to be at the forefront of clinical research in both CAH and in pediatric surgical outcomes research. Under the leadership of Dr. Poppas and Research Coordinator, Kerlly Bernabé, clinicians train in the following areas: the development of databases and research plans, interpretation of data analysis and drafting manuscripts for peer-reviewed journals.
Our institute is participating in the first-ever multicenter study of surgical outcomes for disorders of sex development (DSD). Our center is currently enrolling patients to evaluate outcomes of modern genitoplasty as part of a National Institutes of Health study (Prime recipient: Dr. Amy Wisniewski, University of Oklahoma Health Sciences Center). This multi-site study comes at a critical point to resolve the debate around the medical treatment approaches for children with DSD and findings from this study will inform clinical practice in the future.
